J. Except. People 2014, 3(1):21-32

Research on family factors and support of children with cerebral palsy

Jiaojiao Wu, Shenglin Liu
Faculty of Education, Sichuan Normal University, China

Families are not only the main living area for such children with cerebral palsy but also their most reliable spiritual home. During the long-term care process, family members, especially those main caregivers are under diverse great pressure, the primary aim of this study was to examine family factors and support strategies used. Data regarding situation of children with cerebral palsy and their family factors were obtained from patient records. Results indicated that family coping styles associate with family factors and spiritual support was among the family coping strategies used most often. Not surprisingly social support was used least often, caregivers tended to seek out internal support (e. g. support from the extended family). Findings suggest the necessity to target policy makers, community supports, and attitude towards family rehabilitation. In the long run, to meet diversified needs of the child and their families, it's necessary to provide support services for the aim of enhancing children and parents' self-help ability.

Keywords: Family factors; Family support; School adjustment; Child characteristics

Published: December 11, 2014  Show citation

ACS AIP APA ASA Harvard Chicago Chicago Notes IEEE ISO690 MLA NLM Turabian Vancouver
Wu, J., & Liu, S. (2014). Research on family factors and support of children with cerebral palsy. Journal of Exceptional People, 3(4), 21-32
Share...
Download citation
  • BibTeX (.bib)
  • Bookends (.ris)
  • EasyBib (.ris)
  • EndNote (.enw)
  • EndNote 8 (.xml)
  • ISI WoS (.isi)
  • Medlars (.medlars)
  • Mendeley (.ris)
  • MODS (.xml)
  • Papers (.ris)
  • RefWorks (.txt)
  • RefManager (.ris)
  • RIS (.ris)
  • MS Word (.xml)
  • Zotero (.ris)

    • References

    1. Bogdan, Robert C., & Biklen, Sari K. (1998). Qualitative research for education: An introduction to theory and methods. Boston: Allyn & Bacon.
    2. Brazil, K.& Krueger, P. (2002). Patterns of family adaptation to childhood asthma. Journal of Paediatric Nursing, 17(3), 167-173. Go to original source...
    3. Brown, G. K. & Nicassion, P. M. (1987). Development of a questionnaire for the assessment of active and passive coping strategies in chronic pain patients. Pain, 31, 53-64. Go to original source...
    4. Brown, R. T., Kaslow, N. J., Doepke, K., Buchanan, I., Eckman, J., Baldwin, K. & Compas, B. E. & Willams, R. A. (1990). Stress, coping, and adjustment in mothers and young adolescents in single and two-parent families. American Journal of Community Psychology, 18(4), 525-545. Go to original source...
    5. Ding Jianying. (2010). Home rehabilitation and management of children with cerebral palsy. Clinical Journal of Traditional Chinese Medicine. 22(8).
    6. Ellerton M. L., Stewart M. J., Ritchie J. A. & Hirth, A. M. (1996). Social support in children with a chronic condition. Canadian Journal of Nursing Research, 28(4), 15-36.
    7. Freeman Miller. (2005) Cerebral Palsy. Springer Science & Business Media, 168.
    8. Goonan, B. (1993). Psychosocial and family functioning in children with sickle cell syndrome and their mothers. Journal of the American Academy of Child and Adolescent Psychiatry, 32(3), 545-553. Go to original source...
    9. Hardy D. F., Power T. G. & Jaedicke S. (1993). Examining the relation of parenting to children's coping with everyday stress. Child Development, 64, 1829-1841. Go to original source...
    10. Hinojosa J. & Anderson J. (1991). Mothers' perceptions of home treatment programs for their preschool children with cerebral palsy. (3). Go to original source...
    11. Kliewer, W. & Lewis, H. (1995). Family influences on coping processes in children and adolescents with Sickle Cell Disease. Journal of Paediatric Psychology, 20(4), 511-525. Go to original source...
    12. Kong, F., Perrucci, C. C. & Perrucci, R. (1993). The impact of unemployment and economic stress on social support. Community Mental Health Journal, 29(3), 205-221. Go to original source...
    13. Lammi B. M. (2003). The effects of family-centred functional therapy on the occupational performance of children with cerebral palsy. (5) Go to original source...
    14. Lazarus, R. S. & Folkman, S. (1984). Stress, appraisal and coping. New York: Springer.
    15. Leavitt, M. B. (1990). Family recovery after vascular surgery. Heart and Lung: Journal of Critical Care, 19 (5, part 1), 486-490.
    16. Leiter, M. (1990). The impact of family resources, control coping, and skill utilization on the development of burnout: a longitudinal study. Human Relations, 43(11), 1067-1083. Go to original source...
    17. Li Chunxiang, Feng Yafan et. al. (2002). Family rehabilitation on children with cerebral palsy. Chinese Journal of Rehabilitation Theory and Practice. 8(1)
    18. Liu Shenglin. (2010). Research on family resilience in families of children with hearing impairment. Dissertation of Palacky University, Olomouc, Czech Republic
    19. Li Zeping, Shen Min. (2007). A survey on requirement of family rehabilitation training of guidance for cerebral palsy children in Shanghai. Chinese Journal of Rehabilitation Theory and Practice, 13(8).
    20. Nancie R. Finnie. (2008). Management of rehabilitation in family with cerebral palsy. Shanghai: Science and Technology Press.
    21. Nevilie, K. (1998). The relationships among uncertainty, social support, and psychological distress in adolescents recently diagnosed with cancer. Journal of Paediatric Oncology Nursing, 15(1), 37-46. Go to original source...
    22. Rose, M. A. & Clark-Alexander, B. (1998). Caregivers of children with HIV/AIDS: Quality of life and coping styles.
    23. Rosenbaum P., Paneth N., Leviton A., Goldstein M., Bax M., Damiano D., Dan B., Jacobsson B. (2007). A report: the definition and classification of cerebral palsy.
    24. Wade, S. L., Yeates, K. O., Borawski, E. A., Taylor, H. G., Drotar, D. & Stancin, T. (2001). The relationship of caregiver coping to family outcomes during the initial year following paediatric traumatic injury. Journal of Consulting and Clinical Psychology, 69(3), 406-415. Go to original source...

    This is an open access article distributed under the terms of the Creative Commons Attribution-ShareAlike 4.0 International License (CC BY-SA 4.0), which permits use, distribution, and reproduction in any medium, provided the original publication is properly cited. No use, distribution or reproduction is permitted which does not comply with these terms.


    Return to the content